On the occasion of the World Multiple Sclerosis Day (30 May 2021), the European Brain Council (EBC), member of the BRAINTEASER Consortium, announced the release of its new policy paper, “RETHINKING MS in times of COVID-19”. This new paper is part of the main report “RETHINKING MS in Europe”, a research-driven project offering tangible policy changes to improve the lives of people living with MS across Europe, building on the 2017 Value of Treatment report from EBC.
About RETHINKING MS in times of COVID-19
The objective of this new chapter, ″RETHINKING MS in times of COVID-19″, is to provide concrete and tangible testimonies from relevant stakeholders – clinicians, MS patients, patient advocates, pharma representatives – impacted by the disruption in care, which proved both an obstacle and an accelerator for the implementation of good practices.
EBC highlights how the lives of people living with MS and their families have been affected by COVID-19. In addition to providing a voice to those side-lined by the pandemic response, the gathered testimonies shed light on the need to rethink MS and MS care in terms of coordination, integration and prioritisation in order to ensure optimal care for people living with MS in Europe. Their aim is to contribute to continued awareness raising of MS at EU policy level as well as to feed into the current European policy debate on the direct and indirect consequences arising from the COVID-19 pandemic and encourage stakeholder engagement in EU health policy making.
Visit the virtual exhibition “Living with MS during COVID-19: A case for rethinking MS in the EU”
Through EBC’s unique virtual exhibition, you can view portraits of people supporting EBC’s RETHINKING MS call – including Professor Maria Fernanda Cabrera, Coordinator of the BRAINTEASER project.The portraits feature people living with MS, clinicians, care givers, policymakers and industry representatives who want to make a difference in how MS care and treatment are delivered in Europe. While you navigate the exhibition, you will also come across videos and infographics showcasing the critical need for improved, patient-centred treatment.